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5 Things to Remember If Youre Trying to Explain Your Rare Disease

5 Things to Remember If Youre Trying to Explain Your Rare Disease


5 Things to Remember If You're Trying to Explain Your Rare Disease


How genetics is revealing rare childhood conditions | Spectrum | Autism Research News

The Friends Whose Kids All Have the Same Rare Disease. “

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Top 5 Things to Remember About Kawasaki Disease

Read Liz's story about living with #idiopathicsubglotticstenosis >> http://rarediseaseday.org/stories/6504 Tell your own story >> ...

The RDIG will now continue and build on the BIA's previous work in this important area. If you would like further information please contact Rachael Stewart ...

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10 Rare Diseases That Turn People Into Superheroes

... beyond genome sequencing for some of the most challenging rare diseases. Click here to learn more: https://bit.ly/2Mb8Szr pic.twitter.com/GSLzSzUyVY

There are many symptoms of chronic fatigue syndrome. If you suspect that you may be suffering from this disabling disease, it is important that you seek the

Do not be dismayed by the brokenness of the world. All things break. And all things can be mended. Not with time, as they say, but with intention.

'Stranger Things' Star Gaten Matarazzo Shares What Life Is Like With His Rare Bone Disorder

Rare Disease Groups, Patients Differ on 'Right to Try' Bill Before US Congress

5 Things to Remember If You're Trying to Explain Your Rare Disease

Tell your Rare Disease Story: Rare Disease UK Blog Guidelines - Rare Disease UK

5 Things People With Borderline Personality Disorder Do That Get Mistaken for 'Manipulation'

The BIA has long been a vocal advocate of the need to improve access to treatments for patients with rare and very rare diseases. In 2014, the BIA published ...

... carers affected by a rare disease have never been asked about their mental health. This #MentalHealthAwarenessWeek find out more about our report here: ...

Another big change in how my family approaches living with a rare disease is a shift from focusing on cures to focusing on quality care. When we first ...

7 Possible Reasons You're Having Those Weird Memory Lapses

Adermatoglyphia: The Genetic Disorder Of People Born Without Fingerprints | Science | Smithsonian

Educating Others About Sarcoidosis

A doctor and a patient

What You Can Expect Day to Day

Medical Mysteries and Rare Diseases: William Gahl at TEDxCMU 2011

Variables / News & Features

When Sonia Vallabh lost her mother to a rare disease, she and her husband, Eric Minikel, set out to find a cure.

What is the difference between dementia and Alzheimer's disease? Blog. If you're ...

Public Domain. "

Rare disease makes girl unable to feel pain

A baffling disease. And the only way to help her is to hurt her. | The Washington Post

Where People Turn When Nobody Can Diagnose Their Illness. "

Global Genes RARE Cast: When “Undiagnosed” Is Your Diagnosis

... of mine from college who had since become a pediatrician posted a complaint on Facebook about “made up” health conditions. “Fibromyalgia, I'm looking at ...

I Have a Rare, Chronic Skin Condition, and I Went to Questionable Lengths Looking for a Cure

What do you do if your child has a condition that is new to science?

How to Remember Things 21 Techniques for Memory Improvement on the Magnetic Memory Method memory improvement

5 STDs You've Never Heard Of

4 Things You Should Understand About Living with Kidney Disease

Axel Pfaender

5 Ways to Stay Positive When Chronic Illness Gets You Down

Boy clutching head reading

Cotard's Syndrome: This disorder makes people think that they're dead.

I wish someone had told me .

Exome Sequencing Helps Crack Rare Disease Diagnosis | The Scientist Magazine®

5 Ways a Chronic Illness Can Affect Your Relationship

A recent photo of martial arts superstar Jet Li, who has struggled with hyperthyroidism and

CREDIT: Getty Images

Some perfectly healthy people can't remember their own lives


The Briefing: Rare diseases, genomics, and PURA syndrome support

What was your highlight from this year's campaign? Read about the success of Rare Disease Day 2019 #ShowYourRare ...


Before the medical community had better understanding of the mechanisms that cause disease, doctors believed certain ailments could originate from ...

The Main Symptom Is Pain, But Sleep and Mood Disorders Abound

Five things to remember when you're dealing with work anxiety Dealing with an anxiety disorder in the workplace can be very challenging. Here are five ways ...

Developmental Language Disorder: The most common childhood condition you've never heard of

Depression in Women: 5 Things You Should Know

dating someone with ptsd

L. R. Knost

24 Struggles All INFJs can Understand

6 lies the internet tells you when you Google your symptoms

What's Wrong with Me? I had an autoimmune disease.


The author, center, at age 7. Photo: Courtesy of Patrick Burleigh

The unique aspects of rare disease trials, various sources of information about trials and the importance of clinical trials will be presented with the ...


When Sickness Strikes During the Holidays


Discussion from a 4/5th grade class on what actions they can take to raise


LOOKING FOR CLUES: Sequencing of Scarlett Whitmore's exome identified a rare mutation that could explain her symptoms.KATE WHITMORE

What are the epilepsies?

2019 Lift For Life


6 lies the internet tells you when you Google your symptoms

How to make yourself forget things and delete your memories, according to science

A rare disease gave him tree branch-like hands. After 16 surgeries, he can finally see his fingers.

From his base at the University of Pennsylvania, David Fajgenbaum is trying to change the

How CTEPH Affects Your Body

Read Hannah's story about living with #tuberoussclerosiscomplex >> http://www.rarediseaseday.org/stories/6490 Tell your own story >> ...